We are nearing the one year anniversary of when we found out we lost William. It will be a hard day to remember. Still not a day goes by when I don't think of him.
Today we are in Kansas City preparing for Willa's heart cath in the morning. We arrived today and went to have her go through pre-admission testing. It was a long day of driving, meeting with doctors and getting settled in our hotel room. Willa goes in for her surgery at 8 am tomorrow. The nurses said we will probably be away from her for about 4 hours. They will put a coil in her heart to close the valve that never closed when she was born. They will also do some assessments to see how the hole in her heart is affecting the pressure in her heart. At this point, they don't think they will fix the hole, just the valve. Usually with a heart cath, the patient can go home the same day. With the doctors putting in that coil, she will have to spend the night just to be sure nothing shifts. I know we are in very good hands there.
Some good medical news for Willa - her ROP is gone! She has been cleared and we just have to follow up once a year at the eye doctor. She is still at a higher risk of being near sighted.
She was measured and weighed today. She is 25 inches long and weighs 14 lbs 11 oz! She is over double the length she was when she was born. Here is our big girl yesterday taking her 11 month picture!
